bunrab: (Default)

Today I was going to have gone to see my niece Hanna in her spring play, but I woke up this morning sneezing like mad, and even if it's allergies rather than the cold I thought at first, it wouldn't be a good idea to drive 130 miles there while either sneezing or under the influence of antihistamines, (The non-drowsy antihistamines do zilch for me.) So I let them know I wasn't coming, fed the critters, and went back to bed. When I woke up again in the afternoon, Gizmo had not finished his food and was not able to move properly. It seemed as though he had had a stroke. He hasn't, and at the emergency vet's, he's doing better - staying overnight and getting IV fluids, antibiotics, etc. But right at first, when I tried to see what was wrong, I was just saying shit, shit, shit over and over again. Because today is also exactly 8 months since the ventilator was disconnected after the organ donation people were finished - technical date of Steve's death. And I was already a bit teary-eyed. But, I had been thinking about writing a post about what I feel like now, and so I think I still will.

Here's the thing. The grief isn't any less - I still wake up every day thinking how unfair it is that I'm still alive and Steve's not. I still find that something brings me to tears every day - including writing this post. But what is, finally, diminishing to a detectable extent is the panic and anxiety that goes with the grief. Although I still wonder, every day, how I'm going to manage without Steve, I also notice, every day, that I have managed to muddle through. When I'm driving, I'm no longer so greatly distracted by thinking that "last time I was on this road. Steve was driving" or "I didn't used to have to drive here; Steve always did it." By now, I've driven most places I go to by myself several times, and I so I feel like I am doing the driving, not waiting for someone else to be in control. I still hate having to do it alone, but I am recognizing that I can manage most things. Maybe not the way Steve did them, maybe not as well, but I am managing. And that lessening of anxiety and panic is, I guess, a "feeling better."

There's still stuff not getting done, but I am managing to remind myself every day that I will get to it, even if it's more slowly, and/or less often, than I should - I will get it done. When I hit obstacles, I will manage them or work around them; I've figured out several work-arounds for things that I can't possibly do myself already, and have ideas percolating on several more. I finally found a charity that would pick up the brown recliner sofa for free - Goodwill around here doesn't do free pickup any more; they contract with College Hunks Hauling Junk, who charge a discount rate but nonetheless charge. I had offered the damn loveseat on Freecycle a couple of times, and while a couple of people expressed interest, they never followed through. And nobody was interested in buying it on Craigslist. But some internet research finally found a web site that will show one who picks up donations for free, in a given ZIP code. (Yes, Salvation Army still does, but I am not in the mood to give things to that brand of religion.)

And, while the vet bills from Gizmo's emergency today means I'll have to put it off for a couple months, I've found a company that will refinish the pink bathtub in white, reglazing it, so I don't have to buy a new one and pay a contractor to remove the old one and install a new one. The reglazing will be quicker, cheaper, and will feel more acceptable, because I really hate the thought of throwing out a perfectly good fixture where the only fault is extreme ugliness. I think with the tub white, and I can get a new white toilet installed (much less expensive to remove and replace than a bathtub), then the rest of the bathroom, including the peculiar sinks, will seem much less awful. So there's a plan for that, even if deferred a bit.

Baltimore County sent Steve a jury duty notice, so I got more copies of the death certificate last week and tomorrow I'll mail them one to explain why Steve will not be answering the notice - I'm sure they wouldn't just take my word for it. I have to get more copies of the "Letters of Administration" also - the estate execution stuff - to finish up some other stuff, and I haven't done that as fast as I should have, but at least I know I have to do it and how, so it's progress, if slow.

So. "Feeling better." No less grief, but less panic, and that does make life a teensy bit easier. I went to a grief support group run by Gilchrist for 6 weekly sessions, and that did help, too, talking to other people - I hadn't thought it would, but it did - certainly did more for my peace of mind than NOT going to one, if anybody else is wondering about whether they're worth it. The people in the group decided we'd keep meeting occasionally for lunch, to continue to talk to each other, so we're having lunch tomorrow at Panera. There are 6 of us, and 3 of the others are also in the 55-65 age range as I am, and the other two not too much older. That was a coincidence - it wasn't planned specifically to be a "young widowed persons" group or any other specific age range, so it could have been all older people my parents' age - the age where, forgive me for saying it like this, one starts *expecting* people to die. Most of the groups that are for "young" people are for up to age 50, and most of the rest tend to be seniors over 65, so it was a bit of serendipity to have a group turn out to be people in the neglected middle-age range. Anyway, as it turns out, it is a great relief to be able to talk to other people who are going through the same thing - even if it's not identical, we have more in common than not, just by the fact of losing a spouse. Some lost theirs to long, drawn-out illnesses, one other person to a sudden event like mine. There are people left worse off organizationally and financially, and people not as badly off, but we all have the struggles with those things - even the people who had a couple of years of their spouse battling cancer find out, apparently, when it's over, there's no way you can have remembered to take care of everything, and there's no predicting what details will pop up out of the woodwork that it never even occurred to you could exist. Everybody turns out to have SOMETHING in their bills, paperwork, or housekeeping that they didn't know had to be taken care of ahead of time.

There was going to be a very depressing paragraph here, about what we also have all learned about illnesses that can't be detected or prevented, about how even early treatment doesn't stave things off forever, but after writing it three times, each time was more depressing, and I decided to leave it out.  Even my attempts to summarize it in a sentence are depressing. Let's just say, we all beat ourselves up about what we might have done to prevent things, or save our spouses, and we all need a long time to realize that the should have/could haves are (a) likely not true, and (b) definitely not useful.

So that's the update. I'm coping. I'm still lonely and sad and heartbroken. I would still like someone to come live in my spare room so I have some help. I'm still alive. It's still unfair - and it's still true that there is no such thing as "fair." If there's a pattern in all that, I haven't figured it out yet.


bunrab: (cillie)
I've lost a parent. It didn't hurt like this, nothing even faintly in the same range. I've never had a child, so I have no idea what it might be like to lose a child - perhaps that pain is greater, I don't know; I don't mean to make light of other people's grief by ignoring that possibility, but I just can't speak to it. But I can tell you what it feels like to lose a spouse.

It feels like having your arm cut off, suddenly, without anesthetic.

Oh, the bleeding can be stopped, and the wound sewn up. But you'll never be the same. And you will always be missing a part of yourself. You might go through some physical rehab, and get a prosthetic, and learn to eat with utensils, and get dressed, and drive - but it's not the same as before, it's far more work, and you are always aware that it's not the same. There might be 2 or 3 people in the world who go on to become famous one-handed piano players - but most people won't, especially if they weren't famous piano players before then. Most of us won't have that opportunity of somehow publicly "redeeming" ourselves from having let this terrible accident happen. You just keep on living with the knowledge that not only are you not what you once were, now you will never be what you once might have had the opportunity to be - because you've lost a part of yourself, part of what made you who you are and gave you the life you had and the potentials that life held.

And even the process of learning to get back to normal  is slow. It takes a LONG time to learn to use a prosthetic arm. Months, a year. Grief seems to be the same. Every single thing you do, you are learning to do alone after you've grown used to doing it with someone - and the sheer number of things we all do in the course of a year, or two, means that the relearning process - and the realization that here's yet another thing to relearn - keeps coming back, and back, and back.

Little things: I am an OK driver, safety conscious, reasonably careful, not inclined to break laws. But right now, I find I have to be super careful, because as I'm driving the car, I'm not seeing the road that's in front of me - I'm seeing the road as I was sitting in the car with Steve, the last time we were on it. Or hearing his comments on a particular building or piece of scenery or a sign. It takes every bit of effort I have to remember that I have to look at the road for myself, and drive it as it is right now, and not get distracted by Steve. I don't dare ride the bike right now - this level of distraction would be unforgivably dangerous on a bike. (Think of trying to learn to ride a motorcycle with a prosthetic arm. How long before you could really trust your control well enough to do that?)

So that's what it feels like.

What can I tell other people so that if something like this happens to you, maybe it's just slightly less painful than what I'm going through? Well, nag your spouse about medical check ups more often. I didn't nag Steve about that - I figured he's a grown-up, he knows what he's supposed to do, he's intelligent, he'll do it sooner or later. So when our family doctor stopped taking Steve's insurance, I would remind him once a year to find a new doctor, or just go ahead and pay cash for an annual checkup. I didn't push it. Maybe if I had, he wouldn't have waited until our doctor started taking his insurance again - a few weeks before the heart attack occurred - to make an appointment. If he had seen a doctor during those two years, maybe this could have been averted. I don't know. What I do know is, if the idea of paying cash for the doctor strikes you as something you can't afford "right now" ask yourself, "Can I afford to have my arm chopped off right now, either?" I'll tell you, the doctor's appointment is a lot less expensive than a heart attack and a hospital bill and a funeral. And it also takes a lot less time than those things. So the answer to "I don't have the time" or "I can't afford it" is, "I can't afford what happens if you don't."

And the paperwork - same thing. Haven't made out wills, don't have a folder with all your important paperwork - copies of birth certificates and social security cards and powers of attorney and deed to the house and title to the car and copies of your insurance policy? The way you should think about it is not, "I don't have time for this right now, or we don't have money for an lawyer right now" - the question is, "Would I rather spend the time and money NOW, or would I rather have to do all this alone, later on, while also planning a funeral?" Because unless you are lucky enough to die simultaneously in a nice fiery car crash or something like that, one of you IS going to die before the other, and that other person IS going to have to do all this stuff. And it won't necessarily be the one you expect, either. We made most of our financial plans based on the assumption that, since I'm the one with congestive heart failure, and Steve's grandfathers lived into their 90's and his father lived into his 90's, that I'd die before Steve. Based on the information we had at the time, that seemed reasonable. But now the unexpected has happened, and I am going to have some interesting times. I'm lucky there's no mortgage on the house, and there's enough in savings to pay the taxes and insurance on it just out of savings for another 30 years, were I to live that long - so I won't be without a roof over my head. But in retrospect, we should have left a little more room for doubt in our planning, not been so convinced we knew how the future was going to play out - because, obviously, it didn't play out that way. And I can guess that for some of you, it's the same - you are absolutely SURE that X won't happen before Y. But guess what? It can, and it does, and it did. Your arm can get chopped off at any time, no matter what other plans you made.

I hope that none of this happens to you - I hope none of the other women on my flist get to see their healthy spouses suddenly have a heart attack on the sofa sitting next to them, and then spend 4 days sitting in a chair in the Coronary Care Unit watching the brain waves on the monitor go flat. Or men watching something happen to their spouses either - that's part of the point; it can happen either way. No matter what you think, we cannot stop death forever, and we can't even predict it very well. And for the one(s) left behind, it hurts like nothing else you've ever known, and you don't get over it rapidly, and you'll never "get over it" completely.

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