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Can I use "I've been busy" as an excuse, when I'm home all the time except for trips for lab work and biopsies?

The great news is, I am doing well enough post-transplant that they have already started lowering the immunosuppresant dosages at 7 weeks (that was yesterday) instead of 3 months. My kidney function is not 100% normal yet, and I still have to watch my potassium, but that's because these drugs are real tough on the kidneys, not because the kidneys are otherwise impaired, and everything's still within expected and acceptable ranges. My blood pressure continues to drop toward normal - the diastolic in particular was quite high for several weeks, but now it's down to around 80. For the most part I have my blood sugar under control. I am managing to get some knitting and other needlework done despite the prednisone-induced hand tremors, and am hopeful that the lower dosse of prednisone will alleviate a bit of that, once I get used to taking it all in one dose a day instead of two.

The schedule over the next few weeks is a busy one. Next week I see the surgeon for normal follow-up: x-rays and whatnot to make sure that the physical aspects of the surgery are healing normally and then I can be released from "sternal precautions" and be allowed to use my arms more. I look forward to being allowed to sit in the front seat of a car again! Theoretically I'll also be cleared to drive at 8 weeks, although the aforesaid hand tremors may make me hesitate about that for a bit longer. Next biopsy is the week after that - I'm on every two weeks now, through March, then it goes to once a month. And March 7, I start cardiac rehab. This time it will be at HoCo General (Howard County, MD is referred to by almost everybody who lives here as HoCo; Montgomery County is MoCo.) Last time, after the ablation and lead placement surgery, I had to go up to Greenspring, about 25 miles away, because HoCo didn't have an opening till about a month and a half after I needed to start. I am not sure that the benefits of cardiac rehab then outweighed the additional risks involved in driving a 50 mile round trip largely on the Baltimore Beltway...

Of course we didn't go out to dinner on Valentine's Day = but, since they have already lowered the dosage of immunosuppresants, I am going to be allowed to go out to dinner for our anniversary on March 25! I will have to be cautious - a restaurant with booths, so we aren't cheek to jowl with other patrons whose health status is unknown, and all food cooked well done and served hot. (No salad bars ever again - wah!)

Overall, things are going well. One thing I'm going to try to do before the end of the month is put together a detailed timeline of everything that happened in 2016 that led up to the transplant as a finish for the year. The two really big highlights are getting married on March 25, and getting the transplant on December 30, and both of those events were the start of a new life. But those wouldn't have happened if other things hadn't happened, so it's important to document the chain of events.

My mantra for now: people who make it through the first three months can expect 20 to 30 years!

Wedding photo:
bunrab: (Default)
FB status isn't enough. I should blog more. More pics of my yarn and crafting. Right?

I started off the new year with a new heart - actually, received my new heart on December 30, after only a month and a half on the waiting list. Still adjusting to life as an organ recipient. Still mostly at home except for visits back to the hospital for tests, and will be mostly at home for several more months. That's because transplantees take a whole bunch of immune-system suppressing drugs, which means I could catch a virus or other germ if someone so much as looks at me funny. The doses go down quite a bit after the first 6 months.

So far, changing my schedule around to take meds at strict times and eat meals at strict times has been the biggest adjustment. Well, and coping with the "sternum protection" rules while my breastbone heals - have you ever tried sitting up from lying flat in bed without putting any weight on your arms? Cant bend over and pull out the big bin in our bottom freezer, either.

But then, a regular schedule is probably healthier overall, right? Enough sleep, waking up at the same time every day, those are supposed to be healthy.

Still, it takes some getting used to.


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